Beloved Husband · Father · Grandad · Friend
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." — Revelation 21:4
This is a space to remember John — and to walk alongside the families still walking the Frontotemporal Dementia journey today. For eight years, our family lived this disease. We learned what it took. We learned what it gave. And we learned that love does not let go, even when memory does.
John was a husband, a father, a grandad, and a friend whose warmth filled every room he stood in. FTD took much from him before it took him from us. But it could not take who he was at his core, and it could not take the bond we shared. We were still holding hands at the end. We are still holding hands now.
This site exists for three reasons: to honor John's life, to point grieving and frightened families toward the resources that helped us most, and to invite you to join the fight against the disease that takes too many people too soon.
— With love, Lorrie
Years of honest writing from the heart of the FTD journey — diagnosis, caregiving, hospice, hope. The full chronicle is preserved on CaringBridge for anyone walking a similar path.
Read the JournalPhotographs from the journey we shared.
A few of the stories that captured John's life in the local papers.
The two organizations that walked alongside us, and that continue the fight every day.
AFTD's mission is to improve the quality of life of people affected by FTD and drive research to a cure — through research, awareness, support, education, and advocacy.
The UCSF Memory and Aging Center, directed by Dr. Bruce Miller, is a world leader in FTD research, diagnosis, and care — pioneering brain-behavior science and clinical trials.
A gift to AFTD in John's name supports families newly facing diagnosis, fuels research toward a cure, and keeps his legacy walking forward — one family at a time.
Donate in John's MemoryA celebration of his life, in his own quiet way.
Watch on YouTube · Share with those who loved him